Resources for You and Your Family
As part of our ongoing support, we have provided some resources about Alnylam Assist™ and treatment with ONPATTRO® (patisiran). In addition, we’ve included some organizations that provide community support and educational materials for those affected by hereditary ATTR (hATTR) amyloidosis.
Your Team at a Glance
After you begin treatment and enroll in Alnylam Assist™, your dedicated Case Manager, a Patient Education Liaison (PEL), and the Alnylam Assist™ team will provide ongoing one-on-one support and education in 3 key areas:
•Disease and Treatment
Explore the resources below to learn about treatment with ONPATTRO.
ONPATTRO® (patisiran) Brochure
This brochure helps educate and inform you and your loved ones about hATTR amyloidosis, describes how the polyneuropathy of hATTR amyloidosis affects your body, and shows results from an ONPATTRO clinical study.
Alnylam Assist™ provides insurance benefit guidance and resources
to help support patients throughout treatment.
of patients receiving treatment with ONPATTRO are enrolled in Alnylam Assist™
out-of-pocket cost for ONPATTRO for patients enrolled in Alnylam’s Commercial Copay Program†
of U.S. lives have confirmed access to ONPATTRO across commercial, Medicare, Medicaid, and other government payer categories*
† Patients must meet specified criteria to qualify for assistance. Alnylam reserves the right to make eligibility determinations and to modify or discontinue the program at any time.
* Coverage may vary for individual and plan. Data as of [March 2021].
Young Adult Transitions Brochure
Young adult patients with rare diseases who are transitioning to their own insurance have important decisions to make. This brochure covers the most important aspects of changing insurance plans.
Caregivers of people with hATTR amyloidosis can play a vital role in helping successfully support their loved ones throughout treatment. Caregiver resources are designed to help these important individuals.
Alnylam Assist™ Caregiver Brochure
This brochure was designed to support caregivers of patients with rare diseases by offering best practices and tips on how to talk to the healthcare team and provide self care.
Disease and Advocacy Resources
Amyloidosis Support Groups
A website dedicated to support groups for those suffering from amyloidosis and other amyloidosis-related diseases.
Foundation whose priorities include raising awareness, educating medical professionals, and empowering patients affected by amyloidosis.
Amyloidosis Research Consortium
The Amyloidosis Research Consortium is accelerating the development of effective treatments for systemic amyloidosis through key research, collaboration, and innovation.
National Organization for Rare Disorders
The National Organization for Rare Disorders offers educational videos and interactive webinars along with a variety of additional resources.
The Foundation for Peripheral Neuropathy
A public charity foundation that strives to cure painful neuropathies through collaborative research, education, and treatment.
Global Genes is your ally in the fight against rare disease. Global Genes provides helpful resources while sponsoring local and global events to help connect, empower, and inspire the rare disease community.
Caregiver Action Network (CAN)
The Caregiver Action Network is the nation's leading family caregiver organization working to improve quality of life for the more than 90 million Americans who care for their loved ones.
National Alliance for Caregiving (NAC)
The National Alliance for Caregiving is a non-profit coalition dedicated to improving quality of life for friend and family caregivers and those in their care, by advancing research, advocacy, and innovation.
How do I get started with Alnylam Assist™?
To get started, you must be prescribed ONPATTRO and fill out the Start Form with your doctor. Once the form is completed and you’ve signed it, your doctor can submit the form online or print it out and fax it to Alnylam Assist™. Find out how to get started ›