Meet Joanna, Your Patient Education Liaison

PEL, Joanna

My Experience

I became a registered nurse 14 years ago, and have worked in patient education at all levels of my career.

My Inspiration

I was inspired to become a Patient Education Liaison when I learned that I could help educate patients with a rare disease.

Why I Love What I Do

I love what I do because it gives me the opportunity to help raise awareness of a rare disease and gives me joy that I am helping people—both directly and indirectly.

My Superpower

My superpower is listening, because I believe that everyone deserves to be heard.

Favorite Things

I love to be outdoors—for travel, sporting activities, and trips to the zoo.

My own experiences really play a large part in how I deliver education to patients and their families.

 

Joanna, Patient Education Liaison

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See How to Get Started

Once you and your doctor decide to begin treatment with OXLUMO, we'll work with your healthcare team to start the process.

How to Get Started
Alnylam Assist® Case Manager Kevin

Call Kevin

1-833-256-2748

Monday - Friday,
8am - 6pm ET

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IMPORTANT SAFETY INFORMATION

The most common side effect of OXLUMO® (lumasiran) is injection site reaction (redness, pain, itching, and swelling at the site of injection). These are not all the possible side effects of OXLUMO. Talk to your doctor about side effects that you experience. You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch, or call 1-800-FDA-1088.

OXLUMO has not been studied in pregnant or breastfeeding women. Talk to your doctor about the risk of taking OXLUMO if you are pregnant, plan to become pregnant, are breastfeeding, or plan to breastfeed.

WHAT IS OXLUMO?

OXLUMO is a prescription medicine for the treatment of primary hyperoxaluria type 1 (PH1) to lower oxalate in urine in children and adults.

For additional information about OXLUMO, please see the full Prescribing Information.