AMVUTTRA® (vutrisiran) | Alnylam Patient Education Liaison

Meet Karen, An Alnylam Patient Education Liaison

My Experience

During my time as a nurse, I was always interested in rare diseases and in the complexity of genetics. I have 24 years of educational experience and have enjoyed every moment of it. I have a passion for working with patients who have rare genetic diseases, and I am driven by experiences I have had in my own family involving genetic diseases.

My Inspiration

I became a nurse to help patients and their families achieve their goals of wellness and better understand their disease. After my own family’s experiences with genetic diseases, I saw the value and hope that knowledge can provide.

Why I Love What I Do

I love what I do because of the opportunities I have to meet new patients and learn from their experiences. I am inspired by the warmth and care that families demonstrate during their educational journey. Each family has a different dynamic and story, and it’s amazing to be a part of that.

My Superpower

My superpower is kindness; sometimes even the worst day can be improved with a little kindness.

Favorite Things

I love spending time with my family, including my favorite activity, “Family Game Night.”

“There is a strong need for education and awareness in rare diseases. Knowledge is power, knowledge is hope.”

Karen, Patient Education Liaison

See How to Get Started

Once you and your doctor decide to begin treatment with AMVUTTRA, we'll work with your healthcare team to start the process.

How to Get Started

Call Natalie

1-833-256-2748

Monday - Friday,
8am - 6pm

IMPORTANT SAFETY INFORMATION

What are the most important things I should know about AMVUTTRA® (vutrisiran)?

AMVUTTRA can cause:

•Low Vitamin A Levels

Treatment with AMVUTTRA lowers the amount of vitamin A in your blood. Your doctor will tell you to take a vitamin A supplement every day. You should not take more than the amount of vitamin A recommended by your doctor.

Low vitamin A levels can affect vision. If you have problems with your vision (e.g., night blindness) while taking AMVUTTRA, talk to your doctor. Your doctor may refer you to an eye specialist.

What are the common side effects of AMVUTTRA?

The most common side effects of AMVUTTRA are pain in the joints (arthralgia), shortness of breath (dyspnea), and low vitamin A levels.

These are not all the possible side effects of AMVUTTRA. Talk to your doctor about side effects that you experience. You are encouraged to report negative side effects of prescription drugs to the U.S. Food and Drug Administration (FDA). Visit www.fda.gov/medwatch, or call 1-800-FDA-1088.

INDICATION

What is AMVUTTRA® (vutrisiran)?

AMVUTTRA is a prescription medicine that treats the polyneuropathy caused by an illness called hereditary transthyretin‑mediated amyloidosis (hATTR amyloidosis). AMVUTTRA is used in adults only.

For additional information about AMVUTTRA, please see the full Prescribing Information.