Alnylam Assist & OXLUMO - Support Services for You
Alnylam Assist & OXLUMO - Support Services for Your Patient

*Not a real patient

Patient or Caregiver? We’re Here to Help

Alnylam Assist® provides patient support services for you and your family during your treatment with OXLUMO.


Get Started

When you and your doctor choose to begin treatment with OXLUMO and to enroll in Alnylam Assist®, here are the next steps.

Complete the Start Form with Your Doctor

You and your doctor will complete the Start Form together.

Your Doctor Submits the Start Form

Your doctor has options on how to do this. Doctors will either 1) complete the form with you present, or 2) begin the form by filling out the physician information, the Start Form will then be emailed, via DocuSign, to you to complete your portion.

An Alnylam Case Manager Contacts You

Upon receipt of the Start Form, an Alnylam Case Manager will reach out to you and your doctor within 2 business days.

What You Will Need

Before you begin this process with your doctor, please take a few minutes to review the types of information needed to fill out the Start Form.

Personal Information

This includes basic information, such as:

  • Your name
  • Date of birth
  • Current mailing address
  • Email
  • Phone number

Primary Insurance Information

This includes:

  • Information found on your insurance card, if you have one
  • Your plan name, policy number, and group number

Alnylam Assist® Team Members


Alnylam Case Managers

Once you and your doctor choose to start treatment with OXLUMO, you will connect with a Case Manager who can help you get started and provide product support.

Alnylam Patient Education Liaisons (PELs)

PELs have backgrounds in nursing and can help educate you and your family about your condition and treatment with OXLUMO. 

PELs are employees of Alnylam Pharmaceuticals and they are not acting as healthcare providers and are not part of your healthcare team.


Helpful Resources for Patients
and Caregivers

It can feel overwhelming to face your diagnosis and start treatment. To help you, we’ve gathered resources with information about OXLUMO and understanding insurance. Explore the options below.

Insurance Resources

Alnylam Assist® provides resources to help patients access OXLUMO throughout the treatment journey.

Explanation of Benefits (EOB)

This sheet outlines insurance company EOBs, what information they contain, and how to better understand them.

Download PDF

Glossary of Insurance Terms

A handy reference glossary to help educate patients and caregivers about common insurance terminology.

Download PDF

OXLUMO Resources

OXLUMO Treatment Brochure

This brochure provides patients and caregivers with information about OXLUMO and how it was studied to treat PH1.

Download PDF

Our Message to Caregivers


We understand that it can be challenging to care for someone with PH1. Alnylam Assist® is here to help your loved one access treatment and provide you with additional resources.

See Alnylam Assist® Resources ›


Disease and Advocacy Resources

Get information and support from these independent patient organizations.

Disease resources

National Institute of Diabetes and Digestive and Kidney Diseases

National Center for Advancing Translational Sciences

National Kidney Foundation

Oxalosis & Hyperoxaluria Foundation (OHF)

About rare diseases

Global Genes

National Organization for Rare Disorders

For caregivers

Caregiver Action Network (CAN)

The National Alliance for Caregiving

Healthcare Professional

Are You a

Healthcare Professional

Alnylam Pharmaceuticals developed the Alnylam Assist® program to provide support services for patients and caregivers throughout treatment with Alnylam products.

Have Questions?

Alnylam Case Managers     
are here to help with  
your Alnylam product.

Monday–Friday, 8am–6pm

Alnylam Case Manager
Alnylam Case Manager