OXLUMO® (lumasiran) | Alnylam Patient Education Liaison

Meet Karen, An Alnylam Patient Education Liaison

My Experience

During my time as a nurse, I was always interested in rare diseases and in the complexity of genetics. I have 24 years of educational experience and have enjoyed every moment of it. I have a passion for working with patients who have rare genetic diseases, and I am driven by experiences I have had in my own family involving genetic diseases.

My Inspiration

I became a nurse to help patients and their families achieve their goals of wellness and better understand their disease. After my own family’s experiences with genetic diseases, I saw the value and hope that knowledge can provide.

Why I Love What I Do

I love what I do because of the opportunities I have to meet new patients and learn from their experiences. I am inspired by the warmth and care that families demonstrate during their educational journey. Each family has a different dynamic and story, and it’s amazing to be a part of that.

My Superpower

My superpower is kindness; sometimes even the worst day can be improved with a little kindness.

Favorite Things

I love spending time with my family, including my favorite activity, “Family Game Night.”

“There is a strong need for education and awareness in rare diseases. Knowledge is power, knowledge is hope.”

Karen, Patient Education Liaison

See How to Get Started

Once you and your doctor decide to begin treatment with OXLUMO, we'll work with your healthcare team to start the process.

How to Get Started

Call Kevin

1-833-256-2748

Monday - Friday,
8am - 6pm

IMPORTANT SAFETY INFORMATION

The most common side effect of OXLUMO is injection site reaction (redness, swelling, pain, bruising, itching, and discoloration at the site of injection). These are not all the possible side effects of OXLUMO. Talk to your doctor about side effects that you experience. You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch, or call 1-800-FDA-1088.

OXLUMO has not been studied in pregnant or breastfeeding women. Talk to your doctor about the risk of taking OXLUMO if you are pregnant, plan to become pregnant, are breastfeeding, or plan to breastfeed.

WHAT IS OXLUMO® (LUMASIRAN)?

OXLUMO is a prescription medicine for the treatment of primary hyperoxaluria type 1 (PH1) to lower oxalate in urine and blood in children and adults.

For additional information about OXLUMO, please see the full Prescribing Information.