Resources for You and Your Family
As part of our ongoing support, we have provided some resources about Alnylam Assist™ and treatment with OXLUMO® (lumasiran). In addition, we’ve included some organizations that provide community support and educational materials for those affected by primary hyperoxaluria type 1 (PH1).
Your Team at a Glance
After you begin treatment and enroll in Alnylam Assist™, your dedicated Case Manager, a Patient Education Liaison (PEL), and the Alnylam Assist™ team will provide ongoing one-on-one support and education in 3 key areas:
•Disease and Treatment
Explore the resources below to learn about treatment with OXLUMO.
OXLUMO® (lumasiran) Brochure
This brochure helps educate and inform you and your loved ones about PH1, describes how PH1 affects your body, and shows results from an OXLUMO clinical study.
Alnylam Assist™ provides insurance benefit guidance and resources
to help support patients throughout treatment.
Young Adult Transitions Brochure
Young adult patients with rare diseases who are transitioning to their own insurance have important decisions to make. This brochure covers the most important aspects of changing insurance plans.
Caregivers of people with PH1 can play a vital role in helping successfully support their loved ones throughout treatment. Caregiver resources are designed to help these important individuals.
Alnylam Assist™ Caregiver Brochure
This brochure was designed to support caregivers of patients with rare diseases by offering best practices and tips on how to talk to the healthcare team, dealing with young children, and self-care.
Disease and Advocacy Resources
Oxalosis & Hyperoxaluria Foundation (OHF)
The OHF is dedicated to finding treatments and a cure for all forms of hyperoxaluria, and supports thousands of healthcare professionals, patients, and their families in their fight against this disease.
National Kidney Foundation
The National Kidney Foundation is a lifeline for people with kidney disease, enhancing lives through education.
National Institute of Diabetes and Digestive and Kidney Diseases
The National Institute of Diabetes and Digestive and Kidney Diseases conducts and supports research on the most common, costly, and chronic conditions.
National Center for Advancing Translational Sciences
The National Center for Advancing Translational Sciences turns observations into approaches and technologies that can help deliver treatments to more people more quickly.
National Organization for Rare Disorders
The National Organization for Rare Disorders offers educational videos and interactive webinars along with a variety of additional resources.
Global Genes is your ally in the fight against rare disease. Global Genes provides helpful resources while sponsoring local and global events to help connect, empower, and inspire the rare disease community.
Caregiver Action Network (CAN)
The Caregiver Action Network is the nation's leading family caregiver organization working to improve quality of life for the more than 90 million Americans who care for their loved ones.
National Alliance for Caregiving (NAC)
The National Alliance for Caregiving is a non-profit coalition dedicated to improving quality of life for friend and family caregivers and those in their care, by advancing research, advocacy, and innovation.
How do I get started with Alnylam Assist™?
To get started, you must be prescribed OXLUMO and fill out the Start Form with your doctor. Once the form is completed and you’ve signed it, your doctor can submit the form online or print it out and fax it to Alnylam Assist™. Find out how to get started ›